Of all of the children I know, Jamison is the happiest. In fact, he ALWAYS has been. Sure, he has his moments of frustration... he wants something now and can't wait the 20 seconds it takes to open the box! It's rare, but he will pout... however, to know Jamison is to know that happiness is contagious. He is full of joy and I can't imagine a world without his smile.
I consider myself to be one of the luckiest parents alive. Sure, I have a different story than most... sometimes people think I'm a little overprotective (well, most of the time really) but I just do what is right for my little man. He's like no other and that's what makes Jamison's journey so special!
I don't have much to say about progress at this point. He's 4, he's being more vocal with imitating sounds, but really no words have stuck. We will be having a hearing test done on the 31st and I will let you know more when I have that information. I think he's fine, he just chooses to ignore us ;). (Sometimes I wish I could do that!) He's loving his new room and our new house. School is going great, and I will be updating with information on his programs here in the next week or so. I think it's important for other parents to read the types of stuff he's doing in school so they can compare to what their children are getting and their progress.
One thing I really wanted to get across with this particular post is that raising a child with Potocki-Lupski Syndrome is "different". That's really the only word I can use to describe it! Sure, other parents with "typical" children have a lot of things easy, but I like to focus on what's not so easy for them. I have been blessed in comparison to some of the parents with "typical" children that I know!! I rarely ever have to deal with tantrums like a lot of parents I know that do on a day to day basis. When I go shopping, Jamison is like a little "shopping angel!" I could shop for a week straight and never have a problem with him. AWESOME! He loves to go camping and fishing and boating... it's so much fun.
Look... if I spent my whole life upset about my son's diagnosis, I would never have time to enjoy all of the wonderful beauty he has brought into my world. This diagnosis was really hard for me to understand at first, but after you come to terms with it, you still get to hold that beautiful child of yours... you still get to see their eyes light up when you get them their favorite toy or movie. You still get to hear their beautiful laughter, and that I think is the most wonderful thing about being a parent of PTLS. I see beauty in things that are a little bit "different!"
If you ever need someone to talk with or support dealing with a diagnosis for your child or other family member give me a call... I love to help (208) 640-3542. It's funny, but I have talked with so many people that took months to contact me because they were afraid they would bother me. Honestly, if I didn't want to help, I never would have published this blog. It's for friends, family and to give help and hope to others!
If you need a visual of Jamison's happiness... check out this video :)
